How old were you when you had your stroke? 35
- Date of your stroke? 07/25/2018
- What general area do you live in? DeFuniak Springs, Florida
- Type of Stroke? Cerebellar hemorrhage
- Any known reasons for your stroke? Multiple tests run. Results inconclusive. Post stroke bp normal.
- What were your symptoms? What were you feeling during your stroke? On July 25th my wife says I got dizzy and couldn’t walk or stand and I began to throw up profusely. She took me to the ER. They said I have high blood pressure and diabetes although I had no history. Sent us home. I don’t remember much of this. 6 hours later she took me to another hospital and they found massive bleed on CT. Had brain surgery, part of cerebellum removed- aspiration pnemonia, trach, peg tube and j tube, … after 4 months I am back home, walking with walker, doing speech therapy to hopefully be able to swallow again. My biggest strength has been Lauren, my wife. She has literally been by my side every step of the way. She nurses me, learns my therapies, encourages me. She even made a video of our journey on facebook. I still feel tired allot and therapy is endless. I am a little foggy and talking is rough but I feel myself coming back. It’s so slow but we are getting there.
- Were you administered TPA (Tissue Plasminogen Activator) within the first 3-5 hours of your stroke? No.
- Where did you go for inpatient rehab? Northwest Florida rehabilitation institute
- Where did you go for outpatient rehab? Home health care right now
What are your biggest challenges/residual effects?
Not being able to eat yet. Not being able to walk at a normal pace. My mind is slower.
What advice would you give someone recovering from a stroke now?
Don’t give up.
Any therapy tips you picked up during your time in therapy that might help others?
Sleep in a recliner if you can do so comfortably. This helped me alot. I threw up a lot with my peg tube and even some with j tube but recliner made it better. Stretch during down time. Appreciate your support system and nurses and doctors. You need them.
What keeps you motivated now?
My wife. Every day she points out what I can do that I couldn’t a month ago. She handles my doctors and therpies. I couldn’t do this without her. I swear she is the best wife in existence.
Measure in weeks not days. Don't compare your rehab to others. And remember we are the lucky ones. We survived.
Post recovery, what is something you have learned that might encourage others?
Measure in weeks not days. Don’t compare your rehab to others. And remember we are the lucky ones. We survived.
What is something quirky/fun about yourself?
I AM a photographer. I take beach photos.
What’s your favorite motivation song?
My wife sang “A million dreams” and “tightrope” from the greatest showman to me in the ICU. I don’t remember much else from that time but I remember the song and words. “Every night I lie in bed. The brightest colors fill my head. A million dreams are keeping me awake. I think of what the world can be. A vision of the one “we’ve” seen. A million dreams is all it’s gonna take. A million dreams of the world we’re gonna make.”