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How old were you when you had your stroke? 33

  • Date of your stroke?  07/09/2019
  • What general area do you live in? Leavenworth, Kansas
  • Type of Stroke?  I had a brain hemorrhage
  • Any known reasons for your stroke? It was discovered after an angiogram that I have Moyamoya disease.
  • What were your symptoms? What were you feeling during your stroke?  It was a typical night, getting ready for bed and when I bent over to turn off bedside lamp, I felt a pain in the left side of my head. I thought maybe it was a migraine because I became very sensitive to the light from the tv screen. My husband turned the tv off but the pain was just continuing. I remember having my right hand on my head and my left arm tucked to my side because I didnt want to move it. It felt heavy. My husband kept asking questions and I wanted to respond but I couldnt. I felt the left side of my face slowly go numb. I knew something was wrong. It wasnt just a headache or migraine.
  • Were you administered TPA (Tissue Plasminogen Activator) within the first 3-5 hours of your stroke? No
  • Where did you go for inpatient rehab? Thankfully, most symptoms have recovered on their own.
  • Where did you go for outpatient rehab? I have not started any type of rehab yet. Most symptoms, I was told would recover after brain surgery. Most has but speech is taking a bit longer. I have a hard time remembering things and that’s frustrating because other people are always saying, oh that’s normal cause I forget things all the time too but it’s a different forgetfulness.
Any therapy tips you picked up during your time in therapy that might help others?

Having faith in yourself and not to get frustrated. 

What are your biggest challenges/residual effects?

Memory, I completely forget what someone has said very quickly. I know I had a conversation but cant tell you what it was about. Speech, I can talk but if asked a question, it takes me a minute to find the words to answer. I can hear it in my head but cant find the word.

What advice would you give someone recovering from a stroke now?

Patience. Have patience with yourself. It’s going to be frustrating and an emotional rollercoaster. We just have to take a more curvy path now.

What keeps you going now? 

My faith, my kids, and my family. I have a lot more life to live. I’m not done yet.

Post recovery, what is something you have learned that might encourage others? 

We have been chosen this path of life because God knew we could handle it. We are stronger than we ever knew we were capable of. This isnt a punishment, it’s a blessing because now we can have a different outlook to life. Cherish the small things.

What is something quirky/fun about yourself? Any hobbies?

I feel like I’m an old soul. I love the 40s and 50s era. I love the old time music. I like to do crafts such as sewing and painting.

How did you find out about NOPW?


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